This is a most pressing concern that I should address immediately. I have a lot of people asking me about which doctor they should see.
In fact, I get as many people asking me about doctors as I do people telling me that they’re upset about being misdiagnosed OR not getting the care they needed OR a doctor telling them that there’s no reason to test for Lyme.
I have to tell you right now, I have good news and bad news.
The bad news goes like this: no one doctor will ever have all of your answers. The most upsetting part about my journey (and it happens with most of us who have these strange complex autoimmune disorders like Lyme Disease) is that doctors reach their plateau or comfort level when treating their patients. Most doctors have a certain belief on how Lyme should be treated (or any other disease.) Most doctors will not be actively going to seminars to learn the latest and they will at some point be limited in their ability to treat you.)
I’m not bashing the medical world. My grandfather was president of the South Carolina Medical Association. There’s an entire town in South Carolina that thinks he’s the greatest thing since Jesus Christ and I’m not exaggerating. Everyone in town is named “Perry” because he and his father and brother delivered almost every person in town, so they named their kids after them. The love of healing and curing and treating people runs deeps in my family.
It runs so deep that I was going to be a doctor, but in college I had a terrible food allergy and after seeing numerous doctors who just wanted to prescribe something for me, I lost my desire for it, particularly after realizing it was because I was gluten-intolerant, meaning I don’t do so well eating wheat, barley and other gluten containing foods. Not one specialist I went to see said, “Maybe it’s something you’re eating.” DUH.
The only time I could really get angry at a doctor during my Lyme ordeal was when I went to see the premiere Lyme Disease specialist in the Southeast and when I asked him about success rates (overall rates and success with certain medications), he could not tell me. I found this to be a huge disservice, as I believe if he really wanted to cure people, he would know what his success rates were.
You should be prepared ahead of time that to defeat Lyme takes multiple heads put together. It takes listening to people who have had success. Stop thinking you’re so different. Lyme Disease is Lyme Disease and almost every person with it has had multiple co-infections. That’s just part of it.
I can go even further and say people who get Lyme all have certain variables that are totally out of whack, but they can be corrected. The health of all individuals adheres to certain fundamentals… Which means I’m no different than YOU.
Be prepared to see different doctors and get different opinions. If you had a brain tumor, would you let your general practitioner operate on you or dictate the treatment to get? Heck, No! You would see MULTIPLE experts in different healthcare fields. You might see a Specialized Surgeon to take the tumor out and then see a Chinese Medicine Doctor to build your immune system back up.
The people who do this have the most success, because there is so much out there you can’t expect one doctor to have all the answers. So don’t be frustrated or angry at your current doctor. They probably specialize in certain treatments and that’s their comfort zone, so respect it. Take what you need from each and appreciate their effort. Just know you’re going to have to move on at some point. Use your gut instinct to make that decision as to the time to move on.
During my ordeal I knew when I had reached a plateau with an individual doctor or healthcare provider and a certain kind of treatment and then it was ON TO THE NEXT BEST THING. I saw every type of person in every type of niched health care philosophy. Some things worked and some things were a waste of time.
People think beating Lyme Disease in a few years time is an awesome accomplishment. I think I could have done it in a year and some change had I known what to try. I didn’t have the luxury of knowing someone who had “been there and done that.” I was terribly depressed about the unknown, but I was certainly not paralyzed by it. The only way to get out of a situation is to take action. So my feelings were if nobody can help me, I will just figure it out myself.
At that time there were some Lyme forums with people taking about which medication they were on but nothing revolutionary. If I asked a question I got, “sorry you’re screwed, but don’t worry, some medications might make you feel better.” I thought, “Rip my heart out, why don’t ya?” I never went back.
The good news: You found me. I’m no Holy Grail, but you might be sick for a reason if you haven’t utilized me as a resource yet. I obviously can’t talk about everything in my newsletters for fear of it being construed as medical advice. I can’t even call it a “consult.”
The bottom line: You’re wasting time, money and your life by sitting around spinning in circles if you haven’t contacted me yet. Empowering yourself with knowledge means you can take control of the situation. It means you can seek out the right treatments and you will know immediately if it’s best for you or what you should do next. It means you take control of your own destiny. It means having a direction and path and plan of action that will lead to success.
Having WONDERFUL, multiple disciplinary doctors is great, but the TREATMENTS & Knowledge (and I should say some Diagnostic Testing) are the real stars.
Email arden@beatlyme.com to get some serious “coaching!”
Expect The Best,
Perry
I’m On The Doctors This Friday
Yep, I talked about it before and it’s on TV this Friday. “The Doctors” are doing a show about staying safe during the summer. I’m interviewed on Rocky Mountain Spotted Fever (which was one of my co-infections.) They didn’t want to talk about Lyme (since they had already done a show on that, so no frowny faces, at least they covered a tick born illness which means they are up on the times.) It was hard for me not to mention Lyme Disease, but I did what I was told to do. I do that occasionally.
Dr. Handsome (oops, I mean Dr. Stork) had some interesting things to say about how he treats RMSF in an ER environment. (He’s an ER doctor.) Some people who get it must go to the hospital immediately and it does become life threatening.
The show’s website is: http://www.thedoctorstv.com/ Check your local listings to see when it comes on in your area.
Lyme Rally
This is the last time I’ll mention it. Lyme Rally in South Carolina this Thursday. I would love to see you there; although if you aren’t feeling good enough to go OR if you live too far away, it’s totally understandable.
Info is here: http://www.beatlymedisease.com/LymeRally.htm
Get updates my signing up at www.TheTickSlayer.com
P.S. I will continue coaching people while in Colorado, although availability will be limited. If you’re ready to get on a plan and move forward fast, GET COACHING!
What Fellow Tick Slayers Are Saying:
“Most Valuable Resource I Have EVER Received…”
“Awesome”
“…I Wish That I Spoke To Perry First Before Doing Anything!”
“Information That You Can’t Find Elsewhere…She Is On The Cutting Edge Such That Some Information Really Leaves You Astonished..”
Click here for more coaching information.
Contact Arden For Lyme Coaching: arden@beatlyme.com
P.P.S. Know someone who is sick? Know someone you think might have Lyme Disease and they don’t know it? Tell them you care by forwarding this newsletter to them. Just go to www.BeatLyme.com and sign up for free, then forward your friend a copy!
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The new Zune browser is surprisingly good, but not as good as the iPod’s. It works well, but isn’t as fast as Safari, and has a clunkier interface. If you occasionally plan on using the web browser that’s not an issue, but if you’re planning to browse the web alot from your PMP then the iPod’s larger screen and better browser may be important.
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I’m looking for some really good business blogs to add to my google reader that are worthwhile following on an ongoing basis. Can you make and recommendations? I have Seth Godin’s already. Thanks!. . It would also be helpful if you told me why you liked these blogs.
How does one make money from blogs? How does one go about it or start it?
What are some of the most popular/best blogs about cell phones and wireless tech?
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Just how does one make money from blogs in the first place? Where does one get started in this? Do you have to advertise and use your credit card?
I am looking both for blogs that give unbiased, balanced commentary on all issues or blogs that have a liberal or left-wing slant. Thank you.
If somebody like Julia Roberts or Natalie Portman had a personal blog where they posted pictures of their vacations or something, would you still take them seriously as actors? Do you think celebrities with personal blogs are less credible and taken less seriously than those who don’t? Furthermore, would you visit their blogs to see what they are up to?
Someone said that you had to buy a domain, or your blogs weren’t seen by everybody, is that true? Do you know what a domain is? IF not do not answer please..
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What is a good free blogging website that I can respond to blogs and others will respond to me?
I’d like to be able to tag blogs I like and have them show on my website. Any suggestions on the best route to take on this. Any input would be helpful.
Someone said that you had to buy a domain, or your blogs weren’t seen by everybody, is that true? Do you know what a domain is? IF not do not answer please..
how come some blogs in a blogroll do not have their most recent post listed and others do? How to change that?
Since the MSM is totally skewed, what blogs/websites have you found that give you information that the MSM ignores?
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What is the best software to design websites and blogs?
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Or do you know of any writing sites at all that I could post blogs on, sort of like having a whole website to myself?
Or do you know of any writing sites at all that I could post blogs on, sort of like having a whole website to myself?
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I want to start my own blog: are there such thing as blogs that are totally “open”, and anybody can view it? I keep coming to the kind where you have to add other “friends” to use the site. . Links appreciated. Thanks!.
I am very new to web design as I have no prior experience and know little HTML.. I just want to know what the best software is to purchase to design blogs. I have downloaded CS5 Design Premium with Dreamweaver and Photoshop, but I realize this is a little advanced for me and expensive!!!. Does anyone have suggestions of software or ways to build blogs and websites easily and inexpensive?. . THANKS!
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Just got a Blogger account, it works good, but how do I find different users blogs I like with search. I remember there is a way, but I am not seeing it now. Thanks for your help.
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There are thousands of blogs that requires comments on them. What is the intention of blog comments?
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When I originally commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is added I get three e-mails with the same comment. Is there any way you can remove people from that service? Cheers!
It seems there are websites and blogs devoted to many activities, such tv, music, lives of celebrities, etc.. . But I really cannot find websites and blogs devoted to reading, unfortunately an afterthought when it comes to pastimes.. . Anyone know some really popular and great ones? Classic and current literature are both cool with me, since I read both.. . Thanks so much! =o).