I’m back from the L.I.A. (Lyme Induced Autism) conference in Palm Springs. It was actually two week-ends ago, but I’ve honestly been swamped (no time for a newsletter) this past week. If you were able to attend, I know you’re probably “slightly” overwhelmed at what you learned. If you didn’t get to go, you really missed out. Apparently the conference was streaming online, but I didn’t know about it until I was getting ready to speak. One of the topics from a well known Lyme expert was treating Lyme disease withOUT antibiotics. Imagine that! It’s what I’ve been saying all along. Way too many complications when using long term antibiotics and way too many great “substitutions” to quell the illness when it is chronic.
My topic was my overall Lyme plan which everyone can use, but also using aerobic/anaerobic conditioning (with examples of how to start even when you feel like death) to beat Lyme and get your body to start responding like it should.
While there I heard a lot of good presentations, which completely correlated with my own thoughts and experiences of having a full recovery. Many of these people have treated lots of folks with LD quite successfully, so it’s no surprise that their opinions mirror my own. I even saw a few people from the previous year who have had dramatic recoveries. This makes me very happy. Nothing pleases me more than to hear from people I’ve had a major hand in helping.
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Easy Symptom Checklist for LD and Co-Infections |
Wanna Know How Alike We All Really Are?
I always get this, “How do you know that what works for you, will work for me?” Let’s look at the labs that us Lyme folks have in common. After looking at so many (and obviously at my own), it’s pretty amusing to see how alike we all really are. People who really think they are so different are setting themselves up for failure when it comes to treatment. So don’t make it an excuse as to why you’re not getting better.
Take a look:
Low CD 57
Low B12 and folic acid levels
Elevated CRP
Western Blot (may come up as IND or NEG or POS, but still numerous bands are usually present)
C1Q complex low
Low glutathione
Low natural killer cell function
Thyroiditis
Fibrinogen issues (due to inflammation, the bacteria and probably poor lifestyle BEFORE the disease)
Low Vitamin D
This is just typical of people with Lyme disease and probably MOST people who have autoimmune issues (minus the Western Blot). This means that the correction can occur in just about everyone with similar protocols. The only thing missing here is finding out about co-infections (when you have one type, you have many types of co-infection…it’s just a given) and also what prior health issues you have, because this disease exacerbates prior conditions. It’s easy to think its all Lyme, but it’s about 20% of the problem for most people I’ve coached. So stop panicking about the bacteria! It’s a stinker, but you CAN kill it off and have a full recovery.
Here are some other interesting symptoms based on specific co-infections (from the diagnosis summary of Dr. Therese Yang):
Babesia (co-infection test unreliable)
Fever at onset
Chills, fatigue, drenching sweats, depression
Symptoms worse after exercising
Enlarged liver and subcutaneous “lumps”
Low WBC
Bartonella
Slow onset of symptoms (like Borrelia)
Brain symptoms
Anxiety, overstimulation (“bad nerves”), tremors
Muscle twitches
Sore feet
Gut problems
Swelling of Lymph nodes
Morning fevers
Light sweats
Red rashes (looks like stretch marks)
Rapid response to treatment changes, no response to previous antibiotics, rapid relapse off of antibiotics
Ehrlichia
Rapid onset of illness, includes fevers or headaches (that can be painful)
Muscle pain
Low WBC
Skin rashes
Can have skin lesions
Regular ‘ol Lyme (Bb)- Short List of Symptoms
Monthly flares
Chronic pain, neuropathy, fibromyalgia, arthritis, joint cracking
Brain is foggy (not working right)
Behavior problems (depression, rage, aggression, dementia, eating disorders, panic attacks)
GI problems
Cardiac issues (heart is “racing”)
Sub-normal body temperature
Hair loss/hypothyroid issue
Allergic to antibiotics and sensitive to some supplements
Lupus, ALS, Arthritis diagnosis
Alright, so we already know the list of symptoms is much larger than this, but I think it’s pretty concise as far as what you should be focusing on to figure out your co-infection. Again, you cannot worry so much about the different co-infections because bacteria is bacteria and in the end, it all has to go! The testing for co-infections (just like Lyme) is pretty crappy. So symptoms are KEY !
What’s really interesting is that every symptom up here is what I unfortunately experienced myself! I can honestly say I had it all! While it’s good to know what you’re dealing with, it’s important not to get too wrapped up in it, believing that each bacteria needs its own HUGE protocol to get rid of. There are plenty of ways to treat everything that shouldn’t be there with different kinds of combined treatments that do not cause the body harm. Bacteria cannot thrive in bodies that are strong. It’s basically that simple.
The worst mistake I see people make is that they run off to infectious disease doctors who know only ONE way to treat them and these doctors ignore the fact that the person they are dealing with has multiple health issues that must be addressed (often the biological terrain of that person is a breeding ground for pathogens). Once that individual goes on long term antibiotics for a chronic health condition, they go downhill, when they could be going UPHILL by correcting the underlying problems first!
I’m not against conventional treatment, but I see this problem as more of an epidemic sized problem..usually because people are scared that there is no other way. I too, once I found out I had Lyme, ran off to the infectious disease expert (only to cut ties after about 30 days of treatment, never to return). It WAS NOT easy to NOT know what I was doing at that time and trust my gut instinct to go a different direction. It took heart and guts, but I know it is what got me to this point (back to athletics and a disease free life).
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Lyme Awareness in May |
I’ll be doing my part by working with various media outlets to get the word out. Last year I was on the TV show, “The Doctors.”
Here are a few rallies in several states. I’m sure there is something going on in your state. If you feel the need to be vocal, please attend your state rally. But remember to spend your energy first getting healthy!
For Georgians: Please join us at the Georgia State Capitol on Monday, May 3rd, from 10 am -12:30 pm – a proclamation will be issued declaring May, Lyme Disease Awareness Month in Georgia. Several Georgians affected by Lyme disease will share their stories to help create awareness about Lyme and tick-borne diseases.
We don’t have all the details yet, for instance, whether it will be held in the North Wing or South Wing of the Rotunda. If you are planning to attend, please email us at info@GeorgiaLymeDisease.org to inquire about the exact location, sometime late next week, and we will let you know.
For South Carolinians : Lyme disease awareness rally at the State Capitol again this year on Thursday, May 13th beginning at 10:00 am email: sec2go@yahoo.com
See Ya Later, Tick Slayer!
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Zune and iPod: Most people compare the Zune to the Touch, but after seeing how slim and surprisingly small and light it is, I consider it to be a rather unique hybrid that combines qualities of both the Touch and the Nano. It’s very colorful and lovely OLED screen is slightly smaller than the touch screen, but the player itself feels quite a bit smaller and lighter. It weighs about 2/3 as much, and is noticeably smaller in width and height, while being just a hair thicker.
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Apple now has Rhapsody as an app, which is a great start, but it is currently hampered by the inability to store locally on your iPod, and has a dismal 64kbps bit rate. If this changes, then it will somewhat negate this advantage for the Zune, but the 10 songs per month will still be a big plus in Zune Pass’ favor.
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